In the past month or so I have been to two or three workshops on disability and sexuality. All of these, to be clear, were wonderful. They were, however, almost exclusively focused on physical disability.
Now, I want to be crystal clear here: Conversations about physical disabilities and sexuality are incredibly important. I am glad they are being had, and that I have had the opportunity to be a part of several in the extremely recent past. However. I feel like my particular (almost entirely mental) issues definitely have an impact on my sexuality and sexual behaviour, and I haven’t been a part of as many conversations that centre mental issues (though I have no doubt such conversations do exist, especially Here On the Internet).
So this is an attempt to tease out my thoughts on how my experiences with disability shape my sexuality. I am very aware my experiences are not universal, and I welcome other people sharing their viewpoints and experiences in comments, as long as you are not simultaneously denying the reality of my own.
Oh, and in case it’s not obvious, this post will be talking about my sex life. Not in a gratuitously explicit manner, but, like, I’m going to be frank. Because of this, if you are someone who does not particularly wish to become better informed about my sex life (I could imagine this would be true of some people), I would advise you to click away. Save yourselves!
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Okay, that was the longest preamble ever, am I right? Let’s get down to business. As you probably know (or if you didn’t, you will now!), I deal with depression and with something else that is probably ADHD, but hasn’t been diagnosed because I don’t have any money. These both have their own issues pertaining to my sexuality, and it’s pretty easy to discern which issues come from which source. So I’m going to divide them up!
Depression:
There’s one obvious impact being depressed can have on one’s sex life: when in the throes of a depressive episode, one’s mind isn’t always on carnal matters. Or at least, mine isn’t. I seek out companionship when I’m depressed, certainly–being around people has alleviated some of my bleakest moments. But sex is not on my mind at those particular times. Which, given how frequently those times occur, can kind of suck.
It can have an effect on relationships too. I’ll be blunt: I’m needy. Given my depression, and the fact that I haven’t (yet) hit upon a course of treatment that helps alleviate it reliably, I rely on people for support pretty heavily. I’m lucky that I have friends willing to serve this role. But if I ever get a long-term romantic partner, it’s very definitely going to shape our relationship. I mean, really, how could it not? It’s a big part of my life. But I worry that my frequent need for reassurance is the sort of thing that could put a strain on a relationship. Which, of course, exacerbates my worry that I will never find one, and feeds into this whole vicious-cycle kind of thing. It’s a problem.
The final depression-related issue I want to address is one I have, personally, been lucky enough not to experience to any great extent. But I’ve definitely spoken to people who have. And it’s one that I think gets overlooked a lot of the time: how medication can effect sexual desire. One pretty common side effect of SSRIs is a diminishment of sexual desire or sexual function. This can pretty drastically change someone’s sexual habits–I have at least one friend (who I’m not naming, because while I’m very open about my own issues online, I’m leerier about airing other people’s problems) who has, in her own estimation, been rendered essentially asexual by the combination of meds she is on. Obviously asexuality is not, in itself, a bad thing. Nor, in itself, is one’s sexuality shifting–that happens sometimes! But if it’s an involuntary shift caused by something you are doing to treat a wholly different problem? That’s the sort of thing that can necessitate some pretty radical reconceptualization of yourself. Which can be a scary or unsettling process. Even if you retain sexual desire, some medications can cause problems with sexual function, which is frustrating in the extreme, and can put a substantial strain on, again, long-term romantic relationships (or even short-term couplings). In many cases, the benefit of the antidepressants is worth this drawback. For other people or at other times…it may be a harder decision (I know it would be for me).
The Other Issues
Alright. I mentioned how my Other Issues are probably ADHD, right? Yes. I did. There’s a number of things bound up in that, but the chief one is a matter of focus. I have, to put it mildly, some issues with focus at the best of times–while writing this post, for example, I’m clicking away to do a half-dozen other things every minute or two–but rarely do they frustrate me as much as they do when I’m having sex.
The thing is, my mind wanders. Always. Most of the time, this is tolerable. But when I am actively doing something sexual, it really fucks with my ability to, well, fuck. Because even if I am really into the person with whom I am doing things, I can’t keep myself focused on what we are doing. I’ll be thinking about plans for the week. Or having a song run through my head. Or (as happened recently) obsessively wondering whether it is Wednesday or Thursday. And there are some things one can quite easily do while having all these thoughts run through their brain, but maintaining a state of arousal is not really one of them.
Because of this, a lot of my sexual encounters end without my achieving orgasm. I know orgasm isn’t the be-all and end-all of sexual experience. Believe me, I know that. But it makes me feel…well, kind of stupid, frankly, to have gotten off a partner, and to be doing things I quite genuinely enjoy with said partner, and to be thinking about the fucking day of the week rather than being able to, y’know, lose myself in the moment and, well, come. It is the sort of situation that lends itself to awkwardness, and is probably the single most frustrating sex-related issue I have.
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Uh. I don’t have a neat way to wrap up this post. As with so much of my longer writing, it’s kind of disjointed to begin with, because I don’t have the patience to edit my work (NOT JUST ON MY BLOG. This goes for academic work too. First draft generally = only draft, which I am aware is terrible, and which maybe I will write a whole post about sometime, but now is not that time). This is, not surprisingly, related to some of the issues I was just talking about!
But the one thing I was trying to do with this post is, well, share my experience. Because while I’ve had a lot of conversations about disability and sex, I’ve had very few that address my personal issues. And obviously I am not expecting EVERY CONVERSATION EVER, or even most of them, to be all about my specific problems. Like I said right at the beginning of this post, I think those other conversations are incredibly important. This is just an attempt to pick up on a different thread, as it were.
This seems to be a sex week for me, at least via reading of the blogs. Something is in the air and people want to be horny? Not sure.
As a person with mental and physical disabilities what I am going to say may shock a lot of folks with just one or the other, or someone with preconceived notions.
The biggest barrier for me and sex is not my body. I most often have forgone sex because of my mind. PTSD is a huge reason for me to tell my partner I am not up for it. A good partner respects this. A bad one gets kicked out and never returns.
With ADHD, one of the many foibles of my brain, I had to learn to channel that need for variety into sex. This is easiest when I have a group that I am domming in, but I haven’t done that in ages. I really should,it’s so satisfying. You may need to explain to your partner that you are trying something new and that you may have to shift gears a lot. I have had some partners that felt the sex was mind blowing as they didn’t know what idea I would try next. I also found using toys in bed helped me with this a great deal.
I discuss all of these issues with a partner before we even engage in the idea of sex actually occurring, because I can navigate my damaged body, and they can more easily understand the need for things to be done a certain way there. Not every partner is comfortable with toys, you may not be but when you are in the mood do explore.
The other thing is an element of consent. If one of you is not in the mood, don’t have sex. It is simplistic in idea but can be a struggle when your libido goes away for a year or more. There is more to sex than fucking, there can be satisfaction achieved through other means. Sometimes it is curling up on the couch together and just holding one another, sometimes it is a surprise toy, so that my partner can have something new to get off on while I am drowning in depression.
Morphine has changed my sexual appetites a great deal, and makes it harder for me to show that I am in fact quite horny and ready to drag you off to bed and make the world explode, well not you but whomever I am screwing at the time, it is an effect that is mental despite the drug treating my very physical pain. Without it I will probably die from the effects of depression rapidly. I can’t eat, I can’t breathe, I can’t exist. With it, I have diminished sexual sensation, something I experienced with some antidepressants as well.
I think this may be my experience coming into play, but I again chose to focus on relearning what I liked, and with every new drug you may have to take some time alone to explore your body. It is important to know what makes you feel good in and out of bed, and the best partners and friends respect your needs and know that not every relationship is fifty fifty.
Sorry for the super long reply, but I hope this helps you to connect some of those dots. I think that it would be great if there was a gathering or discussion about mental illness and mental issues and sexuality, disability IS more than just the physical and the physical issues often tie in to at least depression for a little while so they are inter related and should not be ignored.
Thank you for sharing your experience; I really appreciate it. I’ll def. think about some of the things you mentioned there.
I am not going to write here about my sex life for my own an dmy boyfriend’s privacy, but let me just say thanks for posting this. Yes, mental disabilities do affect sexuality, and it is a good thing tha tyou took up the courage to point that out.
This is a fascinating post. Mind if I link it? :)
[...] My disabilities and sex – about sex and sexual problems with depression and possibly another disability, though the word “Dysfunction” is not explicitly used. [...]
@Astrid I hesitated a long time before writing this, entirely because of privacy concerns. I came down on the side of writing it anyway, but I’m not about to criticize anyone who doesn’t.
@annaham Not at all! I’d be flattered, in fact.
Thank you for writing this. I’ve suffered from both depression and ADD related sexual side effects my entire life and it has been incredibly frustrating. Too few people talk about how AD(H)D can affect one’s sex life. It’s hard to know where to turn to look for help or advice or even a sympathetic, knowing ear when it comes to these issues.
Thanks for commenting! It means a lot to me that people are getting something out of my weird semi-coherent rambling.
Interesting to have read this article back to back with Power=Masculine, Weakness=Feminine over at Sociological Images blog.
http://contexts.org/socimages/2010/07/16/power-masculine-weakness-feminine/
Thank you for addressing this topic. It is something that needs much discussion.
I have been meaning to comment since I first read this post…
I’m someone you know in Guelph and I face similar problems. I have assumed that you have a significant online community and local people who you can talk to about such issues, including through your blog.
I have not told my partner much about my health issues, but they definitely have had similar impacts on my sex life. I have been diagnosed with depression and adhd, I doubt I have mentioned this to you before as I am a very private person, and I have not told my partner.
So, basically, you are not alone and I certainly hear you that “invisible” disabilities lack a significant enough platform to speak about issues. Depression and ADHD, although I often reject those diagnoses, are as much a part of my family’s history and a part of two other medical diagnoses I have that impact my life in very substantial ways.
When I bring this up with my current partner, if I ever do, I will let you know how it goes if you want. Until then, keep blogging and keep talking about things that many other people refuse to acknowledge and accept.
I’ll see you around!
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This is really great post. One of the things that has worked for me when I am depressed is decentralizing my own personal orgasm. If it happens, METAL, but if it doesn’t then I can still be intimate with someone without a lot of anxiety about pleasure thresholds and or the other person feeling pressure. Also, developing a long process of foreplay that focuses on touch and sensation can make sex a more sensual experience.
Thank you for writing this. You are just the absolute best.
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